Indy Gregory had the incurable mitochondrial disease (social media)
Indy Gregory, a British girl with the incurable mitochondrial disease, died on Monday after doctors halted treatment to keep her alive, according to her parents, who fought a legal battle with her caregivers.
On Sunday, she suspended care for the 8-month-old after a final decision by Britain's Court of Appeal last Friday, which ruled that stopping the baby's out-of-hospital care would be "very dangerous." due to clinical complications."
Her father, Dean Gregory, said in a statement that "Indy's life ended at 1:45 a.m. (local time and GMT)." "Claire and I (her mother) are angry and we feel it is shameful and heartbreaking."
He added that the Public Health Service in Britain and "the courts not only denied her the possibility to live longer, but also deprived her of the dignity of dying in the family home to which she belongs."
Indy's parents have been battling British doctors for months who have recommended halting care aimed at keeping their mitochondrial baby alive, arguing that prolonging treatment was futile and would increase her pain.
There is no cure for mitochondria, which are genetic diseases that prevent the body's cells from producing energy.
"Mitochondria"
Mitochondria, or mitochondria, are one of the microinternal components of animal and plant cells responsible for generating energy in the cell through enzymes to complete various respiration and metabolic processes of building and catabolism.
The Mayo Clinic says mitochondrial diseases can occur from early childhood to adulthood. Common symptoms of mitochondria include muscle weakness, imbalance, digestive problems, poor growth, liver and heart disease, diabetes, vision and hearing problems, and growth retardation. Mitochondrial diseases may be hereditary.
The court decided during the final hearing last Friday that the termination of care should take place in a medical facility and not in the parents' home as they had demanded. Indy was then taken from hospital by ambulance escorted to a treatment facility.
The case took a diplomatic turn with Italian Prime Minister Giorgia Meloni directly intervening to grant Italian citizenship to the girl at the last minute.
A hospital in the Vatican has offered to continue treating the child. But an English Supreme Court judge ruled on Wednesday that Rome's intervention did not change anything in previous decisions.
Meloni commented on X-platform on Monday: "We did everything we could, everything possible. Unfortunately, that wasn't enough. Have a nice trip, Little Indy."
Source: French + Websites